I sat down this afternoon at my computer with my highlighted article in my hand, ready to write about a concept new to me about evolution
and body weight and insulin resistance.
But then I opened Facebook, and the JDRF Bay Area had a link to an Op/Ed article written by a former JDRF advocate and published in the San Francisco Chronicle, and I got sidetracked.
It was the headline that hit me wrong.
“Lives Wasted as FDA Stalls on Artificial Pancreas Technology”
Let me say first off that I understand that this author is advocating for funding for research on type one diabetes. I understand that advocacy before Congress requires highly charged vehement pleas, essentially, for money. For that, people have to care about the goal
you have and have to want to help.
But here’s the thing that’s hitting me wrong about the entire article, and a lot of the pleas some of these research and other groups are required to adopt in order to wrestle sufficient funds out of others’ hands. It’s not only the MESSAGE; it’s the tone. They are discussing my disease, you know.
MY life isn’t being wasted. MY diabetes isn’t the “constant, frightening, deceptive and malicious” one this author discusses her daughter lives with every day.
My friends with diabetes aren’t wasting their lives, either: they are nurses, teachers, mothers, scientists, engineers, dieticians, social workers, authors, attorneys, students, photographers, volunteers, artists, and more. They are amazing and normal people who are busy improving their worlds as they live with their diabetes.
If I were waiting around on the latest “breathe into a tube instead of prick your finger” machine, or hoping for a pancreas transplant, or if I spent any time at all hoping for a cure; those things would make me feel like I were wasting my life.
Not one of us will get out of this alive, you know. We don’t get guarantees. We only get the here and the immediate right now today.
Sure, we need to plan and learn and dream and work and play and appreciate and share and do our very best as often as we can—but I for one think we have no time available for wasting.
(I also think that any death due to low blood glucose levels is horrible and think the only thing possibly more terrible is the thought that
someone might say that it was a “wasted” life.)
I’m clearly not the best Drama Queen when it comes to what it takes to live well with diabetes. The author says “every hour of every day, individuals with type 1 diabetes have to balance insulin, food and activity to try to prevent low and high blood sugars, and the devastating and costly complications: seizures, comas, kidney failure, heart disease, blindness and amputations.”
Balance: yes.
Prevent: yes.
Devastating: really?!
Costly: alright; I’ll give her that.
Seizures: haven’t had one.
Comas: haven’t experienced one.
Kidney failure: haven’t had any.
Heart disease: not planning on it.
Blindness: none I can see in my future.
Amputations: ticklish as a schoolgirl.
So who is this lady talking about in her article? What is she telling Congress? Who do the SF Chronicle readers now think I, as a type one diabetic, am? How many of them have I already met?
How many will I run past during Sunday’s marathon through San Francisco?
Will they see me as devastated, tragic, or doomed?
I can’t help but think of Bill Polonsky’s speech starter: Well-[managed] Diabetes is the Leading Cause of… Nothing!
If you’re waiting for the Big Bad Diabetes Wolf to come and get you, you may very well have a very long time to wait. Don’t waste that time.
Go out and get living.










